JLK’s Journey Milestones
Oct 28 2007 – JLK was born.
Oct 26 2008 – She took her first steps.
Aug 2009- She was diagnosed with Celiac disease.
May 12, 2013- Our 4th child was born, completing our family.
Aug 22, 2013- JLK started kindergarten
Oct 2013 – We noticed her eye turning inward took her to a specialist who ordered a MRI
Oct 25, 2013- ER visit after headache and vomiting. (1 time)
Oct 27, 2013- MRI showed tumor on the pons.
Oct 28, 2013- JLK turned 6. We were told she had DIPG. A cancer that is terminal upon diagnosis.
Oct 29, 2013- Libby started blogging.. almost every night. Sharing what it’s like for their family throughout this journey.
Nov- Dec 2013- Libby, Jennifer and baby Charlotte stayed in Palo Alto for 7 weeks of radiation. Brothers and Daddy stayed home.
Dec 28-30 2013- Celebratory trip to Disneyland for the end of radiation.
Jan 24, 2014- First post radiation MRI should find new baseline.
Jan 27, 2014- Found out cancer spread.
Jan 28, 2014- Last day she ate a meal, a muffin for breakfast.
Jan 29, 2014- JLK was put on in home hospice care.
Feb 12, 2014- She took her last breath in her mommy’s arms, 3.5 months after diagnosis.