glitter
A glitter photo shoot a few days before Thanksgiving. Cheeks swollen from steroids. . . Lots of personality and sibling love. This day. . .these picture…. wonderful memories. glitter girl Hope you enjoy!
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Hopefully I can keep this entry short. I am not feeling great. . . and although I don’t believe in getting sick I am scared I might be. Today she was still very “methadoned” this morning. Its so scary to see her like that. Eyes half open. . totally out of it but aware. We […]
vows
I just grabbed my husband outside of her room. To remind him how much I love him and how proud I am of us. . and how we as a couple are muddling through this. And then I said this is the easy time. We both know it to be true but after a night […]
help
World cancer day was yesterday. The old me. . . I would have posted about it. Said how horrible cancer is. Read a few blogs or stories. I would promise to do “something”….tomorrow or after the kids get up from naps. Feeling a bit cleaner and like I did my part. . . . and […]
click
…click…click…click You know that sound a roller coaster makes. This is the sound track to my life. . our lives. . right now. Last night I was almost euphoric. I was pacing around after she ate. Waiting to see if she threw up. She went at that applesauce with such fervor. . such hope. I […]
balboa
She peed. She ate. 2 big bites of apple sauce. I felt like Rocky Balboa on top of the steps.
inhale
I lied. I want to blog for me. I want to remember. . . everything. Because even the horror is her. . .and because she brings her beauty to it. And because I want to remember the anguish. To stay angry. To stay focused on what i have called my “after plans”. The thread. My […]
all night
My blogs are going to be short. And probably not every day. I just feel like I need to give a warning of that. Each day is so long . . .normally that would be a complaint. But I am thankful beyond explanation for each moment and each breathe. She was up every hour last […]
plea
She ate a popsicle. She loved it. And she slept. A lot. She had one good 5 minute wakeful period and all 4 kids got to be together opening a gift bag that had been dropped off for them. It was bliss. And this is what I did. I have no idea if it will […]
light
Still not over this hump. We tried the new meds. I talked to her this morning about trying to eat even though she was so scared. She was so excited to eat. Her eyes sparkled as she took those few bites of chocolate gelato. Then she vomited again. I felt her collapse in my […]
