Some girls are just born with glitter in their veins



January 31, 2014 Love4JLK

Today was hard. Will I end any night ever again not feeling that way? ? She had a accident in the middle of the night. But woke up in a good and lively mood. We gave her meds and she drank a bit of water…then threw up. I feel like we keep lying to her. […]

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January 30, 2014 Love4JLK

Today started beautifully. She called for me in the middle of the night to bring her into our bed. I happily did. We slept like we did when she was a baby…wrapped in each other. I breathed in her scent. She rubbed Tonys head and face and pulled him into her. She held her baby […]

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January 29, 2014 Love4JLK

So you know that whole no news is good news thing . . . not always true. I waited to blog so I could try to somewhat wrap my mind around the news . . and to just sit with it for a day. I had pushed for a phone call on Monday, to not wait […]

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January 24, 2014 Love4JLK

Sitting here I know I want to write…but there is so much…I almost feel like I have writers block. My sister and I talked yesterday about how fast things move…How if we don’t talk about something immediately time marches on and we miss our time to talk window since there is always something new to […]

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little wish

January 23, 2014 Love4JLK

She made a wish…all of us together with Disney. It came true. Too much to write about so I will try to share with pictures. I have lots more coming. One of the many, many amazing things Make A Wish/Disney does for families is we get a free photo pass. So all those pros there […]

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January 12, 2014 Love4JLK

Sometimes I find the changes we suddenly face so hard to swallow… Tomorrow we leave for our daughters Make A Wish trip. She loves Disney…so going to Disney World will be amazingly fun for her. But I think thing she is most excited for is being with our whole family together for the vacation. Our […]

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January 11, 2014 Love4JLK

I had planned to blog tonight. But one of our boys has a stomach virus. So in the interest of health I am planning on a early bedtime in preparation for the messy battle ahead. Just wanted  everyone to know we are well and still hopeful that we will leave for our Make A Wish […]

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January 7, 2014 Love4JLK

This weekend we had a very special wedding. Our Fairy became a MRS. I will blog about it more when we get some pictures of it all, I cannot wait to share it! But JLK was a flower girl as was Baby Charlotte and our boys ring “bears”. Couldn’t have possibly been a better day! Here […]

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January 3, 2014 Love4JLK

It feels like so long since I have blogged. I uploaded (or down loaded not really sure the difference!) pictures from my camera yesterday. I looked at them today to remind myself what I have been wanting to write. As life happens I think to myself how I want to write it…and explore it. Coming […]

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December 26, 2013 Love4JLK

This morning I woke up feeling clean. The fears of last night subsided and I feel compelled to write. To say how grateful we are to be waking up with our children. So many parents that lose children don’t get the knowledge we have been gifted. Knowledge that the day she was diagnosed was also […]

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